Schizophrenia in the family, between fear, patience, and love: a literature review
Keywords:
Schizophrenia, Family environment, Adaptation, Caregiver, SupportAbstract
The present research focused on the impact that caregivers have on the adaptation, acceptance, emotional stability, and recovery of patients diagnosed with schizophrenia. The article highlights caregivers as a vital pillar for the patient; the relationship and quality of life provided by the caregiver are essential for the daily lives of both parties. The article offered several alternatives to foster a more pleasant environment for both caregivers and patients; the recommendations proposed psychoeducation, which aims to inform and instruct caregivers about the true reality of schizophrenia. Through the implementation of this method, better care and coexistence are achieved. On the other hand, the recommendations emphasize that caregivers should receive psychological support. From a methodological approach, a qualitative research study with a cross-sectional documentary design was applied; 30 articles published between 2020 and 2025 related to schizophrenia and the family environment were analyzed. The results showed that 60% of the studies were conducted through semi-structured interviews and dynamic groups, 30% combined questionnaires with direct observation sessions, and 10% were based on quantitative tools such as functioning scales and neuropsychological protocols. Thanks to this, it was possible to detail how families build a support network to confront and manage the crises that arise daily.
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References
Aivalioti, E. I., Georgila, P., Anyfandi, E., Chlapani, E., Gournellis, R., & Papadimitriou, G. N. (2023). Brief Solution Focused Therapy on schizophrenia: A preliminary study of family characteristics and psychopathology. Psychiatriki, 34(1), 36–43. https://pubmed.ncbi.nlm.nih.gov/35947864/
Ang, M. S., Rekhi, G., & Lee, J. (2021). Associations of living arrangements with symptoms and functioning in schizophrenia. BMC Psychiatry, 21(1), 497. https://pubmed.ncbi.nlm.nih.gov/34635064/
Araújo, V. L., et al. (2020). Sociofamiliaridad del paciente con esquizofrenia. Research, Society and Development, 9(11), e106731120. https://doi.org/10.33448/rsd-v9i11.10673
Audiffred Jaramillo, R. I. (2022). La representación de la esquizofrenia en familiares de pacientes que habitan en el área metropolitana de Guadalajara: una perspectiva desde la teoría fundamentada. Acta Universitaria, 32, e3481. https://doi.org/10.15174/au.2022.3481
Audiffred Jaramillo, R. I., et al. (2022). El funcionamiento social en la esquizofrenia y la alta emocionalidad expresada desde una perspectiva familiar. Psicumex, 12, e465. https://doi.org/10.36793/psicumex.v12i1.465
Budiarto, E., & Mustikasari. (2024). The Meaning of Family's Adaptation Experiences Among Schizophrenia Caregivers in Tidal Flood Areas in Indonesia: A Phenomenology Study. SAGE Open Nursing, 10. https://pubmed.ncbi.nlm.nih.gov/39484223/
Budiono, W., et al. (2021). Psychoeducation Improved Illness Perception and Expressed Emotion of Family Caregivers of Patients with Schizophrenia. International Journal of Environmental Research and Public Health, 18(14), 7522. https://doi.org/10.3390/ijerph18147522
Duque, H. (2022). Análisis fenomenológico interpretativo de la experiencia vivida en personas con diagnóstico de esquizofrenia. Tesis Psicológica, 17(2). https://www.redalyc.org/journal/1390/139076704004/
Hinojosa-Marqués, L., et al. (2021). Impact of family environment on self-esteem and symptoms in early psychosis. PLoS ONE, 16(4), e0249721. https://doi.org/10.1371/journal.pone.0249721
Hur, J., et al. (2023). Family functioning and psychotic transition in ultra-high-risk adolescents and young adults. Frontiers in Psychiatry, 14, 1177311. https://doi.org/10.3389/fpsyt.2023.1177311
Kalayci, E., et al. (2023). Caregiver burden experiences of caregivers of patients with schizophrenia: A qualitative inquiry. International Journal of Social Psychiatry, 69(3), 543–550. https://doi.org/10.1177/00207640221114564
Lezheiko, T., et al. (2023). Influence of family history and season of birth on schizophrenia clinical characteristics. European Psychiatry, 66(S1), S495. https://doi.org/10.1192/j.eurpsy.2023.1049
Martínez-Cardona, M. del C., et al. (2020). Relaciones de familia en pacientes con esquizofrenia. Archivos Venezolanos de Farmacología y Terapéutica, 39(5), 643–650. https://www.redalyc.org/journal/559/55965386020/
Marutani, T., et al. (2022). Causal beliefs regarding schizophrenia and help-seeking behaviors among patients and caregivers in Cambodia. Transcultural Psychiatry. https://doi.org/10.1177/13634615221105943
Misra, S., et al. (2020). How Early Life Adversities Influence Later Life Family Interactions for Individuals with Schizophrenia in Outpatient Treatment: A Qualitative Analysis. Community Mental Health Journal, 56(6), 1188–1200. https://doi.org/10.1007/s10597-020-00572-z
Myllyaho, T., et al. (2022). Dysfunctional family functioning in high socioeconomic status families as a risk factor for the development of psychiatric disorders in adoptees. Social Psychiatry and Psychiatric Epidemiology, 57(7), 1367–1377. https://doi.org/10.1007/s00127-020-02013-0
Myllyaho, T., et al. (2024). Associations of Duration of Preadoption Out-of-home Care, Genetic Risk for Schizophrenia Spectrum Disorders and Adoptive Family Functioning with Later Psychiatric Disorders of Adoptees. Child Psychiatry and Human Development, 55(2), 350–360. https://doi.org/10.1007/s10578-022-01402-y
Peng, M. M., et al. (2022). Disease-Related Risk Factors for Caregiver Burden among Family Caregivers of Persons with Schizophrenia. International Journal of Environmental Research and Public Health, 19(3), 1862. https://doi.org/10.3390/ijerph19031862
Rodríguez de Ávila, U. E., et al. (2023). Funcionamiento familiar, salud mental y calidad de vida en familias vulnerables. Psychologia, 17(1), 13–24. https://doi.org/10.21500/19002386.6178
Saha, M. (2023). Experiencias de los cuidadores familiares de pacientes con esquizofrenia: un estudio cualitativo en India. Journal of Psychosocial Rehabilitation and Mental Health, 11, 457–468. https://doi.org/10.1007/s40737-023-00355-2
Sanhueza, G., & Galaz Saravia, G. (2023). Inserción laboral y esquizofrenia: una revisión de literatura desde el Trabajo Social. Revista de Investigación del Departamento de Humanidades y Ciencias Sociales, 12(24), 183–206. https://www.redalyc.org/journal/5819/581976827009/
Sari, A., & Duman, Z. Ç. (2025). Family resilience experiences of individuals with schizophrenia–family caregivers dyads: Qualitative study. Journal of Psychiatric and Mental Health Nursing, 32(1), 125–137. https://doi.org/10.1111/jpm.13093
Säkkinen, M., Hakko, H., Wahlberg, K.-E., & Räsänen, S. (2025). Differences in social adjustment during adulthood between adoptees with high and low risk for schizophrenia spectrum disorders: The Finnish adoptive family study of schizophrenia. European Archives of Psychiatry and Clinical Neuroscience, 275(3), 679–690. https://doi.org/10.1007/s00406-024-01865-9
Sipowicz, K., et al. (2023). The Structure of Temperament in Caregivers of Patients with Schizophrenia. International Journal of Environmental Research and Public Health, 20(3), 2119. https://doi.org/10.3390/ijerph20032119
Tikkanen, V., et al. (2022). Deficits in adolescent social functioning and genetic risk for schizophrenia spectrum disorders in adoptees. Psychiatry Research, 316, 114793. https://doi.org/10.1016/j.psychres.2022.114793
Vázquez Morejón, A. J., et al. (2023). Sources of social support and clinical and functional evolution of people with schizophrenia. International Journal of Social Psychiatry, 69(6), 1353–1360. https://doi.org/10.1177/00207640231164284
Verdolini, N., et al. (2021). Effect of family environment and psychiatric history on psychosocial functioning in first-episode psychosis. European Neuropsychopharmacology, 49, 54–68. https://doi.org/10.1016/j.euroneuro.2021.03.011
Villani, M. V., & Kovess-Masféty, V. (2023). Causal Beliefs About and Perceptions of Illness in Persons Experiencing Schizophrenia and in Close Relatives. Journal of Psychiatric Practice, 29(3), 213–226. https://doi.org/10.1097/PRA.0000000000000713
Villar, V. C. F. L., Martins, M., & Rabello, E. T. (2022). Qualidade do cuidado e segurança do paciente: o papel dos pacientes e familiares. Saúde em Debate, 46(135), 1174–1186. https://doi.org/10.1590/0103-1104202213518
Wang, L., et al. (2020). Correlation Analysis of the Quality of Family Functioning and Subjective Quality of Life in Rehabilitation Patients Living with Schizophrenia. International Journal of Environmental Research and Public Health, 17(7), 2481. https://doi.org/10.3390/ijerph17072481
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